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The last time I saw my grandmother she didn’t know who I was. She kept staring and me and my mom, and she was thinking so hard, it was as if I could see gears turning in her head. But, each time she tried, the gears would stop, her memory would fail her. There may have been a flash of recognition in her eyes at some point, but if so, it was so fleeting that it went unnoticed. Later that day, she refused to eat her pureed dinner and fell asleep at the table. The last image I have of my grandma is her tiny little body curled up sleeping in her nursing home bed.

My grandma had dementia, which like Alzheimer’s, steals your memory bit by bit, and eventually makes your body forget to do important things like eat. Watching her suffer, seeing her memory deteriorate more and more each time I saw her, was one of the most difficult things I’ve ever had to do. She used to be funny, vivacious, warm, and caring before the disease robbed her of these things. My family and I consoled ourselves with the fact that, after a while, she had no idea what was going on. But, it didn’t help much, because we knew. Aside from sadness, one of the most frustrating feelings I had was that of helplessness. I kept wishing there was something I could do to help her…and then I learned about the Memory Walk. I already knew about the Alzheimer’s Association because of a special group my grandma had attended in her community. Trained professionals ran activities for people suffering from dementia, and gave their caregivers a much needed break.

In 2007, I participated in the Memory Walk for the first time. My boyfriend and I were in Washington, D.C. for the semester, so we did the walk there. The route was around the National Mall. We started fundraising at the last minute, so we weren’t able to raise as much as we would have liked, but being able to contribute to an organization with a mission to end Alzheimer’s made me feel like I was finally doing something. My grandma passed away in July 2008, so last year, I walked in her memory in New York City. I worked hard to raise as much money as I could, and by walk day, I had raised more than $500. In a few weeks, I’ll be walking for the third time. After reaching out to co-workers, friends, and family, I had already surpassed last year’s total with more than a month to go.

One of the Memory Walk slogans is, “We’re on the MOVE to end Alzheimer’s.” It’s so easy to delete the e-mails you get from friends who are raising money for causes they believe in. It’s easy to think that because you can’t contribute much, you might as well not contribute at all, or that you won’t because you don’t have a personal connection to the cause. It may seem easy to convince yourself that you’re just one person and you can’t really make a difference. But, what if everyone thought that way? What if no one ever took initiative, always assuming someone else would take responsibility? What a scary world this would be. I am on the MOVE to end Alzheimer’s because, I may be one person, but I can make a difference. I refuse to sit by and do nothing. I believe that there will one day be a cure, and if I can save one family from going through what my family went through, even if I never know it, then everything I’ve done will be worth it. After all, we can’t just wait for change to happen; we have to be the change.

The Changemaker

Sam works in Marketing for online ad network, CPX Interactive. She blogs on a wide variety of topics from friendship, to grammar, to life lessons, at Life Is Like a Box of Chocolates. She loves writing, watching football, making new friends, and ice cream, among other things. Sam is big on appreciation, and she would really appreciate your support of the Memory Walk. You can donate here.

You can also catch her on Twitter @sameve!

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  4. Be the change: A plan to change the world, by Rebecca Thorman
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  • Hey,

    The above write up was really touching. You really inspired me. I would like to share with you that I have written a short ebook on ways to be the change and make a difference. I would like you to have a look at it and let me know how you liked it. I can mail it to you.

    The link to the book is http://go.youthkiawaaz.com/ebook1
  • Sam I'm so happy you were able to raise money and participate again in the Memory Walk. There are so many causes, but I've devoted to donating to every single cause I'm asked to join in on (besides the ones I regularly do). Like I said, donating to you (even a little amount) wasn't hard. We have to remember to give back in little ways and although monetary value isn't the only way, it helps towards research and change.

    This is a beautiful post and I know your Grandmother is grateful and proud of you :)
  • Thanks Grace, and thank you for contributing to the Walk! It's amazing that you contribute to every cause you're asked to join in. You obviously have a big heart, and you know that a little can go a long way.
  • Sam, I want to thank you again for your wonderful contribution to the series! What a touching story...you have confronted such obstacles in your life and I really admire you for it. Many people might have become depressed by witnessing their relatives go through such pain, but you actually go out there and do something about it. You definitely demonstrate here the importance of being the change yourself! So thank you...for putting such passion into a cause :)

    I also really enjoyed the last paragraph, especially when you say "It’s easy to think that because you can’t contribute much, you might as well not contribute at all, or that you won’t because you don’t have a personal connection to the cause."

    This is true...if we all thought that way and decided not to contribute, then NO positive change would even happen, at all! And I think it's true that a LOT of people may not contribute to something unless they have a personal connection with it. I think that is just fine, because of course they will be more dedicated to that cause. However, what about far-off situations like strife & poverty in African or Asian countries, for example? How do we get people to contribute to that...when they might not have any personal connection?
  • Akhila: Thank you so much for inviting me to be a part of this series! This is obviously an issue that's very important to me, but I was a little hesitant to write about it here because I've done so before. Fortunately, the title of this series gave me the perfect opportunity to look at my Alzheimer's activism from a different angle.

    I really appreciate your kind words as well. Watching my grandmother go through such pain was really difficult, but I used the anger and sadness I felt as motivation to do something. My goal with this post was to tell my story and how I dealt with it, but also to remind people that they can make a difference. Like I said to Wendy, I think we waste too much time making excuses.

    You're exactly right. There are so many things going on in the world that we may never have a personal connection to, but that shouldn't mean that we aren't willing to help. If it means so much to you to have a personal connection before you take part in a cause, find one. Delve deeper into the issue, find a personal story that touches you. I recorded a video on my blog asking people to support the Memory Walk, and I touched on this dilemma. I said that everyone was welcome to consider me their connection, after all, they already took the time to listen to my story.

    You do such great things on this blog, and this series is no exception. I commend you and admire you for your dedication to social change. Thanks Akhila!
  • Sam,

    This is a beautiful and poignant post that really stirs up raw emotion for me, having experienced something similar, of which we've talked about a bit. The thing about Alzheimer's and dementia is that it doesn't just affect the person who is diagnosed with the disease, but, rather, all of their loved ones as well. To have known someone, loved someone, for so long, to see them slip away bit by bit, forgetting even your name...They may not understand or be aware of what is happening, but, like you say, you know. And the helplessness as bystander may feel worse.

    I love this post. I love that you're taking action and standing up and using your experience as a passion to fuel you forward, to stir awareness and make a change. You may be just one person, but one plus one plus one always adds up to more.

    Thanks for sharing this, Sam. Cheering you on all the way.
  • Susan: Thanks so much. I know you can definitely relate to this post, and I totally appreciate your kind words and encouragement!
  • Thanks for this fantastic post! This part really hit home for me, "It’s so easy to delete the e-mails you get from friends who are raising money for causes they believe in." I thought of the thousands of emails/messages that I must have sent out for the Books For Cameroon project that I am coordinating.

    $5 latte is all it takes to make a difference, and 2,300 libraries could build 30 libraries in West Africa. It doesn't take much, but it does take doing the small acts to put ideas into actions.
  • Totally agree with the $5 latte point! It definitely shows how we place our priorities.
  • Wendy: I just learned about your cause here and love it -- reading really does inspire, a book offers so much more than words. Looking forward to contributing.
  • Wendy: Thanks, I'm glad you enjoyed the post! People waste so much time thinking of excuses that they don't realize how little effort it takes to make a big difference.
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